Emmita’s parents posted a video a year after the collection that saved her life

Exactly one year ago, Santiago Maratea started a new solidarity campaign on his social networks with the purpose of raising US $ 2 million and thus help Emma, a baby who at that time was seven months old and was fighting against a disease that she has had since birth: Spinal Muscular Atrophy.In record time, the influencer collected the sum required so that the daughter of Enzo and Natalí could access this medication and thus improve her quality of life. Now, her parents through a video shared the evolution of the baby to a year of receiving the drug.” We celebrate one year of the best chapter in Emmita’s life. On April 13, 2021, our dream came true, thanks to the enormous heart of you and Santi. Emmita can dream of a better quality of life, and today we can see the advances of our warrior girl who fills us with happiness,” the parents said on Instagram.
There they completed: “We enjoy every minute of it and without a doubt we owe it to you. Infinite thanks for always joining us. We adore them!” The message was accompanied by a moving video in which the little girl is distinguished interacting with a tablet, eating a sweet, laughing with her parents and raising her hands before bathing.
“With effort, love and perseverance, and together with you putting up with you, I managed to breathe, eat, play with my hands, swim and dream that I can have a better life,” the video reads. The girl suffers from Spinal Muscular Atrophy (SMA), a genetic neuromuscular disease that does not allow her to move, breathe or eat well. In order for Emma to have a better quality of life, they had time until she was two years old to get “Zolgensma”, the most expensive drug in the world. “The earlier the disease is detected and attacked, the less SMA progresses. The same thing happens with the medicine,” Natalí said when the collection was being carried out. Emma’s mother stressed that this drug is a “gene therapy”, that is, it “repairs the damaged gene”. This medicine, which is taken only once, “will be able to lead a normal life, although we do not know how it will react. The idea is that I do a lot of kinesiology to try to recover the muscles,” Natalí added.

Original source in Spanish