“are left with the broken body”, was one of the phrases that most struck me listening to my mom (Claudia) telling me about this strange illness that the doctors can explain. “At times it becomes unbearable. Widespread pain, intolerance to cold, heat intense rubbing of clothes… “, describes, and I fill up I the eyes of tears because to as there is no specific explanation, nor is there a cure.”
“One wants to appear the magic pill to stop suffering, but does not appear and you frustrated, getting worse and anguish instead of disappearing, is increasing”, Claudia.
Why? Because it is apparently purely and solely emotional. “The cause of this disease is still unknown. Is believed that Fibromyalgia is developed as a result of an extreme awareness of the nervous system or by genetic origin, which arises after a physical or emotional trauma by modifications in the brain areas responsible for pain or infection”, us explains Dr. Ernesto Crescenti (MN: 50.776), physician, researcher and director of the Institute of Inmunooncologia.
Fibromyalgia: a silent disease that attacks from within “the American College of Rheumatology defined fibromyalgia syndrome based on a history of widespread pain of at least 3 months duration, in combination with sensitivity in 11 or more 18 sensitive points”, has for its part doctor Gonzalo Yamauchi, specialist in family medicine and Musculoskeletal Medicine.
“The pain can have multiple forms occur, can be diffuse and persistent, burning, stinging or biting,” describes Yamauchi.
“It is a disease recognized by all international medical organizations and by who since 1992”, Doctor Gonzalo Yamauchi.
“The most common regions are the lumbar, cervical, shoulder, knees, thighs and arms.” Pain tends to worsen with the cold, infections, stress and lack of sleep. Other symptoms that are typically associated with pain, is depletion or chronic fatigue, no cause that justifies it”, enumerates Yamauchi.
Who also adds that sleep disorders, problems sleeping produce and frequent interruptions of this overnight. As well feel stiffness in the body (usually morning), headaches, abdominal discomfort, paresthesias, numbness and dizziness.
“The evolution of the disease is chronic and will endure in time, but the prognosis can be improved with an early diagnosis, correct information, and a successful therapeutic approach,” Dr. Gonzalo Yamauchi.
“This disease, which mainly affects women between 20 and 50 years, as a result leaves a feeling of pain and hypersensitivity that affects the entire body,” says also Crescenti.
“Living with this disease is very complicated”, assures me MOM, and concerning that since the INECO Foundation understand that “usually it is a load of stress for the family and the environment, and this in turn for the patient with fibromyalgia, because the family does not understand why happens what happens’.” It is fundamental psicoeducar both the patient and the family to understand and be able to accompany it. “Knowing they also that there is a hereditary genetic load in the box”, moreover, recommended for a better evolution/adherence. Tips for living with fibromyalgia aerobic exercise, strength training and stretching or flexibility exercises, relaxation techniques to relieve muscle tension and anxiety, and educational programs that will help you to understand and control fibromyalgia.
It is suggested to improve the quality of sleep and mood which can be with psychotherapy or drug treatments.
There are several drugs that are used for fibromyalgia that help improve the hypersensitivity, but there is a clear indication of a single drug. The election is in charge of the treating physician.
Accept the disease: it is one of the most complicated parts, but as soon as possible this process completes the patient can live with peace of mind. This will involve taking the pain, which can be mitigated, but that will always be present.
Being able to pass what feels like: is necessary that the patient can transmit to your loved ones what happens. To join him to the doctor can be of great help, not just so someone else can hear instructions, but because the more know the environment Dela disease, most understand and help.
Watch for mood swings: Fibromyalgia affects mood. It is frequent that there are changes in behavior, excessive reactions, bad humor, pessimism, apathy. The patient must make a work of self knowledge, as make much more conscious of how they feel and the liability that has its moods, it will be easier to control it.
Know the body: know interpret body signals is essential to be able to live better with disease.
Exercise: it is recommended to do physical activity, at least in moderation. This will help the muscles and joints to be stronger and withstand discomfort.
Beware: having Fibromyalgia is no excuse to do what seems convenient and hurt themselves. The more help the body to experience health, better.
Meet others: go to associations or groups, can be a good place to share what happens, find comfort, give support to others, and thus, weaving a network of understanding and mutual aid.
What are rare diseases?
Rare diseases, such as fibromyalgia, are those that affect a small percentage of the population and have different symptoms and disorders that attack depending on the case and the specific characteristics of each patient. There are between 5000 and 7000 rare diseases that can affect the physical capacity, mental abilities or the sensory qualities and behaviour. It is mostly chronic and degenerative, conditions of which 65% are severe and disabling. In the course of clinical care has been observed that the majority of patients suffering from them usually have a problem on the emotional level or are going through a situation of distress or stress. These emotions in the time seriously affect the development of the daily life and health. The detection of these diseases can be insidious and Tarrying with time. In some cases the diagnosis may be delayed for years, since usually the physician can interpret symptoms as another illness and seek to improve them with common treatments. On the other hand, it is frequent that the patient will experience more acute periods and other referral, which is when there is no symptomatic manifestation. It is only when the patient continues with symptomatology that is achieved by tuning the diagnosis, which can cause you a lot of consequences, such as worsening of the disease or even put your life at risk. It is vital that before the first strange symptom is go to the doctor, since the earlier the disease is discovered, older the chances of get successful treatment. It advised: Dr. Ernesto Crescenti (MN: 50.776). Physician, researcher and Director of the “Institute of Inmunooncologia Dr. Ernesto J.V. Crescenti”. In this note:
